The Silent Killer
That Every Woman Should Know About
{Ovarian Cancer Awareness}
If you are anything like me, you are busy. You are so busy with your day to day life – all the cleaning and tidying. The challenges that come with small children, the exhaustion of having toddlers, the time that withers away with keeping up with your active teenager.
We are busy moms. September is a fast paced month. The start of school, the end of Summer vacation…it is a whirlwind as our life spins around us. For a second we are suspended in time as we think of all that needs to get done. September brings another special reminder…one that you probably didn’t even know about, or at least haven’t given much thought to. It’s the reminder about Ovarian Cancer. First let me tell you a quick story…
It all began 15 years ago. It was a humid July afternoon when the pain came on. It was so strong she could ignore it no longer. As she doubled over, she hoped that the pain would fade.
Her youngest daughter’s wedding was just days away. So many plans, so much to do. She sat, clutching her abdomen. Her older daughter quickly asked what was wrong.
Worried, her daughter quickly prompted her to get checked by a doctor. Fearing that it might be appendicitis or something equally as bad, they made their way to a hospital emergency room and waited for the results of some tests.
My mom waited until after the wedding festivities and after my week long honeymoon to tell me the news. I remember it well. I was standing in my small apartment’s kitchen when I answered the phone call. It was a corded phone. You know the type? The plastic curls attached itself to the wall of my kitchen.
I answered the phone not knowing that what she was about to say would change my life – my family’s life forever. It was at that moment that my mom relayed what she had kept hidden for almost 2 weeks. My mother had Ovarian Cancer.
A few days ago September came again. Year after year September is Ovarian Cancer Awareness Month. Did you remember to wear teal in recognition of this type of cancer? No? Me, neither. That’s because Ovarian Cancer doesn’t get as much publicity and recognition as many other types of cancer. We aren’t as aware of it as we should be.
Let me tell you, before my mom was diagnosed, I never thought of it, either. It is not something that doctors talk a whole lot about. “It is the fifth most common cause of cancer-related death in women.” (source) Did you know that it is also called “The Silent Killer“? That is because many of the symptoms are easy to ignore. It is easy to tell yourself it is something else. The cruel irony of this disease comes with this statistic: caught early, there is a 90% cure rate. The problem? It is very difficult to catch early.
As women, we know we need to go to the gynecologist to get checked for cervical cancer – so yearly, we drag ourselves in for an internal and a pap smear. Let’s clear something up real quick: that test checks ONLY for cervical cancer. It will not tell you if you have ovarian cancer.
We are told to get our mammogram and pap test but are never warned or told the risk of ovarian cancer. The easiest way to diagnose this type of cancer is through the use of transvaginal ultrasound. This is not routine – not even for close relatives of a person who has ovarian cancer. There is a blood test called the CA-125, but I’ve been told it can yield a false positive. It is not accurate in pre-menopausal women. It can also give a false reading if you have other disorders including endrometriosis.
Some may think a quick pelvic exam would give an indication that you have ovarian cancer. My mom went for all of her check ups and hers was not diagnosed by her own doctor. It took her driving to the ER and getting checked there to find it. Her tumor was the size of a grapefruit. It wasn’t small. It wasn’t minor. It was stage III by the time it was caught.
Symptoms
So today, I want to share the common symptoms of ovarian cancer. They call it The Silent Killer for a reason.
- Bloating of the abdomen
- A feeling of fullness in the abdomen or quickly feeling full when eating
- Painful sexual intercourse
- Frequent and unexplained gas or indigestion/changes in bowel habits
- Abnormal vaginal bleeding
- Frequent urination
- Abdominal pain and discomfort
You can see that these can all be written off as different ailments. There is no one clear sign that someone has this type of cancer. Not all of the symptoms have to be present.
Risks
- If you have close family members who have breast cancer or colon cancer, this increases your risk of ovarian cancer, as well. “About 10% to 15% of ovarian cancers occur because a genetic mutation (change) has been passed down within a family.”source There are genetic tests available to screen you for the genes that cause these cancers.
- Also, “Women with a first-degree relative (mother, daughter, or sister) with ovarian cancer have about a three times higher risk of developing the disease.”source
- Ovarian cancer can be diagnosed at any age but is found most often in women between the ages of 50-65.
- Hormone Replacement Therapy and IUDs have come up in research studies to increase the risk. source
- Women who have never had children and are post-menopausal are also at risk.
- Other risk factors might include the use of talcum powder, having endometriosis, smoking, and being obese. source
The truth is, there is ongoing research but you don’t have to meet these risks to develop this type of cancer. My mother was the first one in my family to have ovarian cancer.
My mother lived for three years and one month with Ovarian Cancer before she passed away. She stayed with us on earth just long enough to meet my first child. I cherish the years I had with her. I see that time as a gift. She was able to see me get married and graduate college. She and I talked every day on the phone through my first pregnancy. We were somehow able to squeeze all the mother-daughter time and advice that I would ever get into those three years.
The end of her life was very rough. It was horrible for her and it was horrible for my dad who took care of her every day, effectively becoming her nurse. There came a time when she could no longer eat and was completely on feeding tubes because of this monstrous disease. The cancer continued to spread despite a complete hysterectomy, the endless rounds of chemo and even the experimental treatment that she underwent near the end.
I know, through talks with her in the month before she passed away, that she passionately believed that not enough research had been done. We don’t know why my mom developed this. My mom was the healthiest person I knew. I’m thankful for the time I had with her. So, I write this for my mom and I write this for every woman out there who is currently suffering with this terrible disease.
I wish I could tell you that there is an easy, routine test. There isn’t. If you have any of these symptoms and you are tempted to brush them off – don’t. Call your doctor and asked to be checked. Do it for my mom, do it for your children, do it for you.
Don’t let this silent killer stay silent. We need to fight with all we have.
For more information on ovarian cancer read here: ovariancancer.com.
For more info on giving for research go here: www.colleensdream.org.
- http://womenshealth.about.com/cs/ovariancancer/a/ovarcansilkille.htm
- http://www.mayoclinic.org/diseases-conditions/ovarian-cancer/basics/symptoms/con-20028096
- http://www.cancer.net/cancer-types/ovarian-cancer/statistics
- http://ovariancancer.com/signs-and-symptoms/
- http://www.cancerresearchuk.org/about-cancer/type/ovarian-cancer/about/ovarian-cancer-risks-and-causes
Jen Grice says
I’m sorry for your loss. My mother had Ovarian Cancer as well. It’s sad to learn that most OC is caused by the HPV virus. After personally testing negative to this virus, I still think it’s important to get tested for both the virus and this cancer, at least every 3 years. Thank you for spreading awareness!
Sasha says
Jen, I’m sorry your mother also had Ovarian Cancer. I did not know of the link between HPV and Ovarian Cancer! Do you mind me asking, how you went about getting tested for the virus? Is it something I can do at the OBGYN?
Ovca Survivor says
Hi Sasha – Ovarian cancer is *NOT* caused by HPV (please see my comment below).
As long as you see your GYN regularly (once a year) and get pap smears, they will be able to tell (via testing) whether or not you have the strain (there are many) of HPV that can lead to cancer (typically cervical cancer). This usually doesn’t happen unless your pap smear comes back abnormal, however.
Sasha says
Thank you for clearing this up! I wasn’t sure but couldn’t find where the research had been done.
Ovca Survivor says
HPV does *NOT* cause ovarian cancer! It can cause cervical, vaginal and vulvar cancers, but is NOT linked to ovarian cancer. Please – it is so important to get the correct information out!
There are many legitimate sites that can further explain this, but here’s one from the CDC:
http://www.cdc.gov/cancer/knowledge/pdf/cdc_gyn_comprehensive_brochure.pdf
Sasha says
Thank you!
Angela says
Thank you for the reminder and information on talking to doctor about early detection. I am sorry for the loss of your mom and grateful that you have the wonderful memories of your time with her.
Sasha says
Angela, I’m glad you found this. Thanks for the encouraging words.
Keisha Gardner says
I am so sorry to hear about your mom, but glad you are sharing your story. I had an undiagnosed grapefruit sized dermoid cyst in my right ovary, found due to complications during my second pregnancy. I’d had symptoms I’d been asking about for years, but no one took me seriously. Thankfully, it was not cancerous, but when they first found the mass, they didn’t know. I wish I had been more aware, because it could have saved me and my child a lot of suffering. He is fine now, but he was born premature and spent time in the nicu. They had to remove my right ovary. One of my cousins had ovarian cancer, and has survived, thankfully.
I relate on the loss of a mom to cancer, and writing to share. My mom died of lung cancer in 2009 at age 44.
Sasha says
Keisha, I’m sorry for your loss. I’m also sorry to hear about your cyst. That must have been very difficult to deal with during your pregnancy! I’m glad your son is doing well. Thank you for sharing your story.
Jenny Kim says
That’s so sad. Cancer must be the only disease that you can just get without cause. My aunt had colon cancer, and recently died. But like your mom she was very healthy, and always watched what she ate. Many people I know that are older seems to be getting cancer. I feel there are two ways to die naturally for most people. You either get heart disease or cancer. You are considered lucky to go in your sleep or just fall over dead. I’m mentally preparing myself, because I could get cancer in my lifetime. There is a good chance of it.
Sasha says
Jenny – I think that is why many call it a battle with cancer, it is such a struggle. It is very hard to deal with. I’m sorry for the loss of your aunt. I hope for more research to be done for all cancer.
Doreen Tapper says
Such important information! Thank you for sharing this.
Sasha says
Doreen – I’m glad you found this site. Thank you for your encouragement.
Kelly says
So very sorry to read about your loss. Thank you for sharing your story. I am a survivor of Ovarian Cancer. I was diagnosed at the young age of 17, just one month shy of my 18th birthday. I had no symptoms whatsoever, and it was only because I went to see my doctor due to a persistent sinus infection that my disease was even discovered during the course of a routine blood panel. My tumor was the size of a softball the day of my diagnosis. By the next day, it had grown to the size of a football. It was a very aggressive. Had my diagnosis come a day or two later, I wouldn’t be here; the disease would have claimed my life. Now, it is nearly 23 years later, and I can proudly say I am a survivor. It is my prayer that no other woman should be diagnosed with the awful disease.
Sasha says
Kelly- WOW! Your story is amazing. I didn’t realize how aggressive it could be. In my mom’s case, it is possible, that the tumor just grew that fast. I always wondered why it took so long for diagnosis. So glad you shared your story here and I’m thankful you are doing well, now. I hope for a screen test to be offered to all women.
Angela a says
I’m so sorry for your loss. Thank you for sharing your story. I am an ovarian cancer survivor of three years. I was diagnosed at 46 and getting ready to celebrate my 49 birthday. I had no genetic marker but my husband knew something was wrong because I would always bounce back if I didn’t feel well and this time I didn’t. My message is to listen to the love ones around you.
Sasha says
Angela – Thank you for sharing your story here. I’m so happy to read that you are doing better. It is amazing how many get this with no genetic marker, but I really hope for more research to be done.
http://facebook.com/feedback/testing/social12 says
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Enrique Pasion says
Very sorry about your mother. Also I do admire your courage and positive outlook in surviving this silent killer. Ovarian cancer is indeed a serious condition that should be properly treated and prevented, if possible. Thank you for sharing this.
lee says
thanks for sharing this post. I enjoyed reading. Its always good to be informed
HealthyForGenerations says
That is pretty amazing!